Several of you have been asking why roses are significant to me or why my usernames include roses in it. I will explain all in this post…
As you may remember in my first post, Cystic Fibrosis is also referred to as 65 Roses. Since 65 Roses and Cystic Fibrosis is a huge part of my life, I bring awareness to CF in every way possible. I wear lots of purple, the awareness color for Cystic Fibrosis, my favorite flower is a rose, and any username that I create has a rose in it. This will bring up curiosity and eventually questions, giving me the opportunity to bring awareness to Cystic Fibrosis. Below, the story explains the beginning of 65 Roses. The following story was copied from the Cystic Fibrosis Foundation, all rights go to the Foundation.
Mary G. Weiss became a volunteer for the Cystic Fibrosis Foundation in 1965 after learning that her three little boys had CF. Her duty was to call every civic club, social and service organization seeking financial support for CF research. Mary’s 4-year-old son, Richard (Ricky), listened closely to his mother as she made each call.
After several calls, Richard came into the room and told his Mom, “I know what you are working for.” Mary was dumbstruck because Richard did not know what she was doing, nor did he know that he had cystic fibrosis.
With some trepidation, Mary asked, “What am I working for, Ricky?” He answered, “You are working for 65 Roses.” Mary was speechless.
He could not see the tears running down Mary’s cheeks as she stammered, “Yes Ricky, I’m working for 65 Roses.”
Since 1965, the term “65 Roses” has been used by children of all ages to describe their disease. But, making it easier to say does not make CF any easier to live with.
The ugly fact is that cystic fibrosis is a life-threatening genetic disease that affects 30,000 children and adults in the United States.
Sadly, Richard lost his fight against CF in 2014. Richard is survived by his parents Mary and Harry, who have both dedicated their lives to finding a cure for CF, his devoted wife, Lisa, his adored dog, Keppie, and his brother, Anthony.
The “65 Roses” story has captured the hearts and emotions of all who have heard it. The rose, appropriately the ancient symbol of love, has become a symbol of the Cystic Fibrosis Foundation.